I haven't written about my MS or MS in general for a long time.
It's just a series of pains, none of which are actually in my ass.
I had a call this weekend (love caller ID) from a woman whom I had met at a support group. She's unrelenting. A very nice and kind woman who has made me a mission of hers. She invites me to each and every MS group function and even has invited me to the occaisional afternoon movie and lunch.
When I answer the phone...I decline politely. I give some lame arse excuse to the date and time or just my fatigue level. Why can't I just say, " Your group is incredibly depressing! I don't want to fill my days with discussions of meds and symtoms. I want to fill my good days with things I enjoy doing, and THAT'S not one of them!" Honestly, I was the only one in the room not zipping around in a scooter. That's not something I want to see in my probable future.
I mentioned this to my doc once. His reply was that many others with MS don't go to the afternoon meetings because they are more functional and have jobs. I am functional...on most days, and no job. I've been on SSD for 5 years now, and damn it, I'll hobble and walk like a drunk as long as I can. Use it or lose it I tell myself.
So, I get out and about. I go to an art class once a week, visit galleries, go to the beach (when will these tourists go home?!) to the park with my furry monster, tend my flowers and orchids...I try to stay busy, occupied, integrating my life and illness.
Here's one of my favorite games:
When waiting in line at the store, or in an elevator, or any one of those moments of awkward silence with a stranger, inevitably the other person, noticing my dependence on my cane will say something about it. It's usually something like, "I just got rid of my cane after my auto accident/knee surgery/hip replacement." " Did you hurt your knee/hip/whatever?"
I know I should tell people I have Multiple Sclerosis.
Educate the public....NOT.
I have replied with that answer. It's not the answer they were looking for.
They wanted to identify with me...not be puzzled or scared by the possibility that that could happen to them.
Inevitably, when hearing that answer, before I can elaborate, they shrink away. Ewwwwwww, maybe it's catchy!
So my new game is a quick, jaw dropping answer. Here are a few....
"Rock climbing accident last summer....just now getting back to normal."
"I was parasailing and the rope broke. I crashed hard into the gulf."
"I used to be in the roller derby."
"After this last injury, I'm giving up mud wrestling."
Then hobble away, concealing your smile.